Role of Parents and Carers in Clubfoot: Difference between revisions
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Revision as of 23:12, 8 August 2017
Original Editor - Rosalind Owen in conjunction with Africa Clubfoot Training Team as part of ICRC and GCI Clubfoot Content Development Project
Top Contributors - Naomi O'Reilly, Kim Jackson, Rachael Lowe, Simisola Ajeyalemi, Meaghan Rieke and Rucha Gadgil
Introduction[edit | edit source]
Families of children with clubfoot play a very large, and essential role in their treatment. Once the position of the foot is corrected and foot abduction bracing is started it is the parents that must apply braces every night until they are 4-5 years old. They must also attend multiple and frequent clinic visits.
Challenges[edit | edit source]
Families face many challenges during clubfoot treatment including: [1][2]
- Duration of treatment - from birth until 4-5 years of age or longer
- Frequency of appointments
- Practicalities of application of the foot abduction brace for 23 hours for the first 12 weeks and at night and nap times until 4-5 years of age
In some locations additional challenges can include:[1]
- The distance, duration and cost of travel to attend clinic appointments
- Families not understanding clubfoot treatment correctly, or not being given clear instructions on their roles in treatment
- Facing stigma from their communities due to traditional or cultural beliefs around clubfoot, such as that it is a curse. Mothers of babies born with clubfoot can be ostracised by their communities or families for these reasons.
Parents Experience[edit | edit source]
Role of Physiotherapist[edit | edit source]
As well as providing empathetic support and information throughout the treatment process, physiotherapists have a role in ensuring that patients who are at risk of, or who have dropped out of treatment are identified and followed up. This means putting systems in place so that when patients do not attend for follow up visits as scheduled this is noted and there is a means of contacting them to remind them of their appointment and encourage them to attend.
Resources[edit | edit source]
There are useful materials on the STEPS South Africa website on supporting parents throughout the treatment process:
Manuals[edit | edit source]
Step by Step Guides[edit | edit source]
Posters[edit | edit source]
References[edit | edit source]
- ↑ 1.0 1.1 1.2 Drew S, Lavy C, Gooberman‐Hill R. [/onlinelibrary.wiley.com/doi/10.1111/tmi.12684/full What Factors Affect Patient Access and Engagement with Clubfoot Treatment in Low‐and Middle‐Income Countries? Meta‐Synthesis of Existing Qualitative Studies using a Social Ecological Model]. Tropical Medicine & International Health. 2016 May 1;21(5):570-89.
- ↑ 2.0 2.1 Nogueira MP, Fox M, Miller K, Morcuende J. [/www.ncbi.nlm.nih.gov/pmc/articles/PMC3748873/pdf/IOJ%202013%20161.pdf The Ponseti Method of Treatment for Clubfoot in Brazil: Barriers to Bracing Compliance]. The Iowa Orthopaedic Journal. 2013;33:161.
