Professional Roles in Mental Health and Cerebral Palsy: Difference between revisions

No edit summary
No edit summary
Line 29: Line 29:
=== Coping in Daily Life ===
=== Coping in Daily Life ===


* The Coping with and Caring for Infants with Special Needs (COPCA) Program is designed to offer family autonomy to choose activity and participation for living quality for a child with CP
* The Coping with and Caring for Infants with Special Needs (COPCA) Program is designed to offer family autonomy to choose activity and participation for living quality for a child with CP.<ref name=":1">Çankaya Ö, Seyhan K.ICF‐CY‐Based Physiotherapy Management in Children with Cerebral Palsy. Chapter 4. IntechOpen, 2016. Available from https://www.intechopen.com/chapters/51530 [last access 29.12.2023]</ref>
* Family decides about child care and the interaction of health professionals. This family‐specific parenthood focuses on child training which gives the child responsibility and become independent.
* Family decides about child care and the interaction of health professionals. This family‐specific parenthood focuses on child training which gives the child responsibility and become independent.<ref name=":1" />
*  
* The goal is to provide the family with tools to solve daily care problems that are observed during parenthood using family own resources.<ref name=":1" />
* The role of the physiotherapist is to coach the family, listen to them,  make observations and suggestions,  inform and support them.<ref name=":1" />
* Learn more about COPCA program [https://pure.rug.nl/ws/portalfiles/portal/132156791/Chapter_1.pdf here].


== Occupational Therapists ==
== Occupational Therapists ==
Goals:
# To instruct individuals in daily life skills
# To foster improved work performance
# To facilitate social participation
=== Daily Life Skills ===
Ability to perform activities of daily living effectively and independently demand skills in multiple areas. These areas include:
* Gross Motor Skills . Example: lift up a leg to put on trousers.
* Fine Motor Skills. Example: hold a spoon and bringing it to the mouth without spilling food.
* Visual Skills
* Cognitive Skills
* Sensorial Skills
* Communication Skills
The occupational therapist's role in engaging the child with daily life skills is to:
* Help the child participate to the best of their ability and potential
* Try to develop new skills
* Engage in communication, cognitive, and play activities with the child
* Give the child option
* Create a bond between a child and a caregiver
Read more about the ADL in cerebral palsy [[Activities of Daily Living in Cerebral Palsy|here.]]


== Speech Language Pathologists ==
== Speech Language Pathologists ==
Goals:
# To enhance speech and communication abilities to effectively interact with peers and express needs, thoughts, and emotions.
# To address swallowing difficulties to enhances overall quality of life.
# To promote emotional well-being and mental health of the individuals.
=== Speech and Communication Abilities ===
'''Speech:'''
* Therapy to increase respiratory effort focusing on maintaining sufficient breath support for words or phrases and breathing at appropriate points in phrases.
* Therapy to improve coordination of exhalation and phonation
* Therapy to improve articulation and production of individual speech sounds
'''Communication:'''
Good communication depends on the sending and receiving of messages between at least two individuals. Communication uses speech, vocalisation, facial expression, gesture and whole body movements which can be affected by motor abilities of the child with CP.
* Teaching the caregiver to become more responsive to the child’s communication.
* Investigate the use of augmentative and alternative systems of communication (AAC) to supplement the child's natural modes of communication.<ref>Berenguer C, Martínez ER, De Stasio S, Baixauli I. [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9266194/pdf/ijerph-19-08091.pdf Parents' Perceptions and Experiences with Their Children's Use of Augmentative/Alternative Communication: A Systematic Review and Qualitative Meta-Synthesis.] Int J Environ Res Public Health. 2022 Jul 1;19(13):8091.</ref>


== Nursing ==
== Nursing ==

Revision as of 22:21, 29 December 2023

This article or area is currently under construction and may only be partially complete. Please come back soon to see the finished work! (29/12/2023)

Original Editor - User Name

Top Contributors - Ewa Jaraczewska, Jess Bell and Kim Jackson  

Introduction[edit | edit source]

Association of motor impairment, sleep disorders, pain and fatigue with mental health disorders in children, adolescents and adults with cerebral palsy is well documented.[1][2] The number and the complexity of factors affecting mental health requires the team of professionals to address all of them to achieve the best possible outcome. Both high- and low-income countries have only few mental health services that provide adequate support for mental health care within rehabilitation systems to address the unique mental health needs of individuals with cerebral palsy.[3] This article highlights the roles of different healthcare professionals to help understand their role within the rehabilitation team. 

Physiotherapists[edit | edit source]

Goals:

  1. To address the physical aspects of care
  2. To promote mental health and emotional well-being
  3. To identify ways to help the children and their families to cope in daily life

Physical Aspects of Care[edit | edit source]

  • A daily dose of at least sixty minutes of moderate-to-vigorous intensity, mostly aerobic, physical activity, across the week physical activity is recommended for children aged 5 to 17, regardless of disability.
  • Adults aged 18–64 years including those living with chronic conditions and disability should complete "at least 150–300 min of moderate-intensity aerobic physical activity, or at least 75–150 min of vigorous-intensity aerobic physical activity, or an equivalent combination of moderate-intensity and vigorous-intensity activity throughout the week for substantial health benefits."[4]

You can learn more about physiotherapy management from this Physiotherapy Treatment Approaches for Individuals with Cerebral Palsy article.

Mental Health and Emotional Well-Being[edit | edit source]

  • Pain can lead to depression and anxiety. Physiotherapy intervention can positively affect mental health by helping individuals with CP manage pain. [5]
  • Regular physical activity can help to reduce symptoms of depression and anxiety. Physiotherapy intervention promotes physical activity through development of an exercise program tailored to the abilities and goals of a child and a caregiver. [5]
  • Physiotherapy should address an individuals' physical abilities and regain their sense of control over their bodies. This can help improve self-esteem and body image.[5]

Coping in Daily Life[edit | edit source]

  • The Coping with and Caring for Infants with Special Needs (COPCA) Program is designed to offer family autonomy to choose activity and participation for living quality for a child with CP.[6]
  • Family decides about child care and the interaction of health professionals. This family‐specific parenthood focuses on child training which gives the child responsibility and become independent.[6]
  • The goal is to provide the family with tools to solve daily care problems that are observed during parenthood using family own resources.[6]
  • The role of the physiotherapist is to coach the family, listen to them, make observations and suggestions, inform and support them.[6]
  • Learn more about COPCA program here.

Occupational Therapists[edit | edit source]

Goals:

  1. To instruct individuals in daily life skills
  2. To foster improved work performance
  3. To facilitate social participation

Daily Life Skills[edit | edit source]

Ability to perform activities of daily living effectively and independently demand skills in multiple areas. These areas include:

  • Gross Motor Skills . Example: lift up a leg to put on trousers.
  • Fine Motor Skills. Example: hold a spoon and bringing it to the mouth without spilling food.
  • Visual Skills
  • Cognitive Skills
  • Sensorial Skills
  • Communication Skills

The occupational therapist's role in engaging the child with daily life skills is to:

  • Help the child participate to the best of their ability and potential
  • Try to develop new skills
  • Engage in communication, cognitive, and play activities with the child
  • Give the child option
  • Create a bond between a child and a caregiver

Read more about the ADL in cerebral palsy here.

Speech Language Pathologists[edit | edit source]

Goals:

  1. To enhance speech and communication abilities to effectively interact with peers and express needs, thoughts, and emotions.
  2. To address swallowing difficulties to enhances overall quality of life.
  3. To promote emotional well-being and mental health of the individuals.

Speech and Communication Abilities[edit | edit source]

Speech:

  • Therapy to increase respiratory effort focusing on maintaining sufficient breath support for words or phrases and breathing at appropriate points in phrases.
  • Therapy to improve coordination of exhalation and phonation
  • Therapy to improve articulation and production of individual speech sounds

Communication:

Good communication depends on the sending and receiving of messages between at least two individuals. Communication uses speech, vocalisation, facial expression, gesture and whole body movements which can be affected by motor abilities of the child with CP.

  • Teaching the caregiver to become more responsive to the child’s communication.
  • Investigate the use of augmentative and alternative systems of communication (AAC) to supplement the child's natural modes of communication.[7]

Nursing[edit | edit source]

Psychologists, Counsellors, and Social Workers[edit | edit source]

Resources[edit | edit source]

  • bulleted list
  • x

or

  1. numbered list
  2. x

References[edit | edit source]

  1. Van Der Slot WM, Nieuwenhuijsen C, Van Den Berg-Emons RJ, Bergen MP, Hilberink SR, Stam HJ, Roebroeck ME. Chronic pain, fatigue, and depressive symptoms in adults with spastic bilateral cerebral palsy. Dev Med Child Neurol. 2012 Sep;54(9):836-42.
  2. Whitney DG, Warschausky SA, Whibley D, Kratz A, Murphy SL, Hurvitz EA, Peterson MD. Clinical factors associated with mood affective disorders among adults with cerebral palsy. Neurol Clin Pract. 2020 Jun;10(3):206-213.
  3. Eres R, Reddihough D, Coghill D. Addressing mental health problems in Australians with cerebral palsy: a need for specialist mental health services. Advances in Mental Health, 2022;20(3): 281-284.
  4. Bull FC, Al-Ansari SS, Biddle S, Borodulin K, Buman MP, Cardon G, Carty C, Chaput JP, Chastin S, Chou R, Dempsey PC, DiPietro L, Ekelund U, Firth J, Friedenreich CM, Garcia L, Gichu M, Jago R, Katzmarzyk PT, Lambert E, Leitzmann M, Milton K, Ortega FB, Ranasinghe C, Stamatakis E, Tiedemann A, Troiano RP, van der Ploeg HP, Wari V, Willumsen JF. World Health Organization 2020 guidelines on physical activity and sedentary behaviour. Br J Sports Med. 2020 Dec;54(24):1451-1462.
  5. 5.0 5.1 5.2 Grande A. Relationship between Physiotherapy and Mental Health. Available from https://www.focusphysiotherapy.com/relationship-between-physiotherapy-and-mental-health/ [last access 29.12.2023]
  6. 6.0 6.1 6.2 6.3 Çankaya Ö, Seyhan K.ICF‐CY‐Based Physiotherapy Management in Children with Cerebral Palsy. Chapter 4. IntechOpen, 2016. Available from https://www.intechopen.com/chapters/51530 [last access 29.12.2023]
  7. Berenguer C, Martínez ER, De Stasio S, Baixauli I. Parents' Perceptions and Experiences with Their Children's Use of Augmentative/Alternative Communication: A Systematic Review and Qualitative Meta-Synthesis. Int J Environ Res Public Health. 2022 Jul 1;19(13):8091.