Adherence in Clubfoot Treatment: Difference between revisions

No edit summary
mNo edit summary
Line 2: Line 2:
'''Original Editor '''- Africa Clubfoot Training Team as part of [http://www.physio-pedia.com/Clubfoot_Content_Development_Project ICRC and GCI Clubfoot Content Development Project]
'''Original Editor '''- Africa Clubfoot Training Team as part of [http://www.physio-pedia.com/Clubfoot_Content_Development_Project ICRC and GCI Clubfoot Content Development Project]


'''Top Contributors''' - {{Special:Contributors/{{FULLPAGENAME}}}}   
'''Top Contributors''' - {{Special:Contributors/{{FULLPAGENAME}}}}  
</div><div align="justify">
</div><div align="justify">
== Introduction ==
== Introduction ==
Treatment for Clubfoot requires the long-term commitment of parents and caregivers in order to achieve a successful outcome. Non-adherence is one of the key reasons for failure of clubfoot treatment. According to Göksan et al, patient and family adherence to brace use is a common problem, as nonadherence is directly related to relapse.<ref>Göksan SB, Bilgili F, Eren İ, Bursalı A, Koc E. Factors Affecting Adherence with Foot Abduction Orthosis Following Ponseti Method. Acta Orthopaedica et Traumatologica Turcica. 2014 Dec;49(6):620-6.</ref> <ref name=":0">Africa Clubfoot Training Project. Chapter 16 Africa Clubfoot Training Basic & Advanced Clubfoot Treatment Provider Courses - Participant Manual. University of Oxford: Africa Clubfoot Training Project, 2017.</ref>
treatment for clubfoot requires the long-term commitment of [[Parents of Children with Cerebral Palsy|parents and caregivers]] in order to achieve a successful outcome. Non-adherence is one of the key reasons for failure of clubfoot treatment. According to Göksan et al, patient and family adherence to brace use is a common problem, as non-adherence is directly related to relapse<ref>Göksan SB, Bilgili F, Eren İ, Bursalı A, Koc E. Factors Affecting Adherence with Foot Abduction Orthosis Following Ponseti Method. Acta Orthopaedica et Traumatologica Turcica. 2014 Dec;49(6):620-6.</ref><ref name=":0">Africa Clubfoot Training Project. Chapter 16 Africa Clubfoot Training Basic & Advanced Clubfoot Treatment Provider Courses - Participant Manual. University of Oxford: Africa Clubfoot Training Project, 2017.</ref>.


== Reasons Non-Adherence ==
== Reasons for non-adherence ==
* Beliefs and Stigma
* Beliefs and stigma
* Community / Family Pressure to Consult Traditional Healers
* Community / family pressure to consult traditional healers
* Community / Family Pressure to Not Continue Treatment
* Community / family pressure to not continue treatment
* Lack of Confidence in treatment
* Lack of confidence in treatment
* Lack of Understanding about Treatment and the Full Protocol
* Lack of understanding about treatment and the full protocol
* Believe Treatment is finished after Casting
* Believe treatment is finished after casting
* Baby Cries with Cast or Braces on
* Baby cries with cast or braces on
* Poverty - No Money for Transport or Treatment Costs
* Poverty - no money for transport or treatment costs
* Long Distance to Clinic
* Long distance to clinic
* Lack of Support by Fathers / Families
* Lack of support by fathers / families
* Family / Marital Conflict
* Family / marital conflict
* Other Responsibilities e.g. Child Care, Work
* Other responsibilities e.g. child care, work
* Poor Communication from Health Workers
* Poor communication from health workers
* Poor Relationship with Health Workers
* Poor relationship with health workers
* Cultural Practices e.g. Nomadic Tribes
* Cultural practices e.g. nomadic tribes
* Impatience
* Impatience
* Poor Appointment Tracking and Follow-up after Missed Appointments
* Poor appointment tracking and follow-up after missed appointments
* Incorrect Prescription of Braces:
* Incorrect prescription of braces:
** Foot Not Yet Corrected
** Foot not yet corrected
** Shoe Does Not Fit Well
** Shoe does not fit well
* Lack of Clear Instructions on Braces:
* Lack of clear instructions on braces:
** Importance
** Importance
** How to Fit
** How to fit
** Wearing Protocol <ref name=":0" />
** Wearing protocol <ref name=":0" />


== How to Promote Adherence ==
== How to promote adherence ==
Clinic Staff can do a lot to Promote Adherence:
Health care professionals can do a lot to promote adherence:
* Recognize that parents are the most important team members - They must feel they are partners in the treatment process
# Recognise that parents are the most important team members - they must feel they are partners in the treatment process
* Understand that Treatment is difficult for Parents
# Understand that treatment is difficult for parents
* Spend Time with Parents
# Spend time with parents
** Build Relationship
#* Build relationship
** Teach
#* Teach
** Answer Questions
#* Answer questions
* Parent Education and Counselling
# Parent education and counselling
* Communicate Well and Check Parents Understand what you have said
# Communicate well and check parents understand what you have said
* Target Key Risk Times
# Target key risk times
** End of Casting
#* End of casting
** Start of Bracing
#* Start of bracing
** Start of Night Bracing
#* Start of night bracing
* Provide Simple Written Information
# Provide simple written information
** Brochures  
#* Brochures  
** Booklets
#* Booklets
* Treat Clubfoot Well
# Treat clubfoot well
** This raises Family’s Confidence in Staff and Treatment
#* This raises family’s confidence in staff and treatment
* Encourage Fathers & Family Members to Participate in Treatment
# Encourage fathers & family members to participate in treatment
* Help Families Problem-Solve Common Problems
# Help families problem-solve common problems
* Support Costs of Treatment
# Support costs of treatment
** Supplies
#* Supplies
* Ensure Good Appointment Scheduling, Tracking, and Follow-Up
# Ensure good appointment scheduling, tracking, and follow-up
* Link Families with Community Agents that may help:
# Link Families with community agents that may help:
** Community Health Workers
#* Community health workers
** Social Entities
#* Social entities
** NGOs
#* NGOs
** Faith-based Organizations
#* Faith-based organizations
* Promote Family-Friendly Clinics
# Promote family-friendly clinics
* Parent Advisors / Counsellors
# Parent advisors / counsellors
* Designate a Team Member specifically for Parent Education and Support
# Designate a team member specifically for parent education and support
** Clinicians are often too busy for this <ref name=":0" />
#* Clinicians are often too busy for this <ref name=":0" />


== References  ==
== References  ==

Revision as of 10:53, 15 November 2017

Introduction[edit | edit source]

treatment for clubfoot requires the long-term commitment of parents and caregivers in order to achieve a successful outcome. Non-adherence is one of the key reasons for failure of clubfoot treatment. According to Göksan et al, patient and family adherence to brace use is a common problem, as non-adherence is directly related to relapse[1][2].

Reasons for non-adherence[edit | edit source]

  • Beliefs and stigma
  • Community / family pressure to consult traditional healers
  • Community / family pressure to not continue treatment
  • Lack of confidence in treatment
  • Lack of understanding about treatment and the full protocol
  • Believe treatment is finished after casting
  • Baby cries with cast or braces on
  • Poverty - no money for transport or treatment costs
  • Long distance to clinic
  • Lack of support by fathers / families
  • Family / marital conflict
  • Other responsibilities e.g. child care, work
  • Poor communication from health workers
  • Poor relationship with health workers
  • Cultural practices e.g. nomadic tribes
  • Impatience
  • Poor appointment tracking and follow-up after missed appointments
  • Incorrect prescription of braces:
    • Foot not yet corrected
    • Shoe does not fit well
  • Lack of clear instructions on braces:
    • Importance
    • How to fit
    • Wearing protocol [2]

How to promote adherence[edit | edit source]

Health care professionals can do a lot to promote adherence:

  1. Recognise that parents are the most important team members - they must feel they are partners in the treatment process
  2. Understand that treatment is difficult for parents
  3. Spend time with parents
    • Build relationship
    • Teach
    • Answer questions
  4. Parent education and counselling
  5. Communicate well and check parents understand what you have said
  6. Target key risk times
    • End of casting
    • Start of bracing
    • Start of night bracing
  7. Provide simple written information
    • Brochures
    • Booklets
  8. Treat clubfoot well
    • This raises family’s confidence in staff and treatment
  9. Encourage fathers & family members to participate in treatment
  10. Help families problem-solve common problems
  11. Support costs of treatment
    • Supplies
  12. Ensure good appointment scheduling, tracking, and follow-up
  13. Link Families with community agents that may help:
    • Community health workers
    • Social entities
    • NGOs
    • Faith-based organizations
  14. Promote family-friendly clinics
  15. Parent advisors / counsellors
  16. Designate a team member specifically for parent education and support
    • Clinicians are often too busy for this [2]

References[edit | edit source]

  1. Göksan SB, Bilgili F, Eren İ, Bursalı A, Koc E. Factors Affecting Adherence with Foot Abduction Orthosis Following Ponseti Method. Acta Orthopaedica et Traumatologica Turcica. 2014 Dec;49(6):620-6.
  2. 2.0 2.1 2.2 Africa Clubfoot Training Project. Chapter 16 Africa Clubfoot Training Basic & Advanced Clubfoot Treatment Provider Courses - Participant Manual. University of Oxford: Africa Clubfoot Training Project, 2017.