Family of Participation-related Construct

Original Editor - Trista Chan

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Introduction[edit | edit source]

Family of Participation-related Construct (fPRC) is a framework proposed by researchers as an alternative to the ICF-CY framework. the fPRC acknowledges that participation is not solely based on an individual's ability, but is influenced by both intrinsic and extrinsic factors, and considers their individual, family and social context.

  • gap: participation construct unclear in intervention research[1]
  • importance of understanding family participation within different context
  • overview of components of the fPRC

Components of the fPRC[2][edit | edit source]

Environment/ context[edit | edit source]

  • physical, social economical, cultural and institutioal context on participation
  • importance to understand following: preference, sense of self and activity competence within the family

Preferences[edit | edit source]

  • what is preference and how it impact participation
  • individual factors
    • interest, values?
    • what is important for the family
  • environmental factors
    • cultural influences
    • accessibility/ opportunities
  • implication: identifying preference, accommodating

Sense of Self[edit | edit source]

  • what is sense of self and how it impact participation
  • perception of themselves: identity, roles, values, beliefs
  • self esteem/ confidence
  • implication: promoting, validating,

Activity Competence[edit | edit source]

  • what is activity competence and how it impact participation
  • same as ICF-CY[2]
  • capability and capacity[2](physical and cognitive)
  • perceived ability to participate/ perform
  • skills, knoelwdge, confidence
  • implication: self efficacy, skills development (physical and cognitive), recognise strength and limitations,

Participation[edit | edit source]

  • what is participation? distinguish attendence, onvolvement and engagement
  • What is the significance within family dynamics?

Attendance[edit | edit source]

  • definition
  • characteristics, example: physical presence, limited interaction/ contribution
  • factors affecting: external factors, preference and motivation

Involvement[edit | edit source]

  • definition
  • characteristics, example: active participation, contribution to activity completion or progress
  • factors affecting: interest, imporatance of activity

Engagement[edit | edit source]

  • definition
  • characteristics and example: level of active participation and interaction, emotional investment, commitment
  • factors affecting: connection, belonging, alignment to indivisual beliefs

Resources[edit | edit source]

References[edit | edit source]

  1. Imms C, Adair B, Keen D, Ullenhag A, Rosenbaum P, Granlund M. ‘Participation’: a systematic review of language, definitions, and constructs used in intervention research with children with disabilities. Developmental Medicine & Child Neurology [Internet]. 2015 Sep 28;58(1):29–38. Available from: https://doi.org/10.1111/dmcn.12932
  2. 2.0 2.1 2.2 Imms C, Granlund M, Wilson PH, Steenbergen B, Rosenbaum P, Gordon AM. Participation, both a means and an end: a conceptual analysis of processes and outcomes in childhood disability. Developmental Medicine & Child Neurology [Internet]. 2016 Sep 19;59(1):16–25. Available from: https://doi.org/10.1111/dmcn.13237