Family of Participation-related Construct: Difference between revisions

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Family of Participation-related Construct (fPRC) is a framework proposed by researchers as an alternative to the ICF-CY framework.  the fPRC acknowledges that participation is not solely based on an individual's ability, but is influenced by both intrinsic and extrinsic factors, and considers their individual, family and social context.
Family of Participation-related Construct (fPRC) is a framework proposed by researchers as an alternative to the ICF-CY framework.  the fPRC acknowledges that participation is not solely based on an individual's ability, but is influenced by both intrinsic and extrinsic factors, and considers their individual, family and social context.


gap: participation construct unclear in intervention research<ref>Imms C, Adair B, Keen D, Ullenhag A, Rosenbaum P, Granlund M. ‘Participation’: a systematic review of language, definitions, and constructs used in intervention research with children with disabilities. Developmental Medicine & Child Neurology [Internet]. 2015 Sep 28;58(1):29–38. Available from: https://doi.org/10.1111/dmcn.12932</ref>  
* gap: participation construct unclear in intervention research<ref>Imms C, Adair B, Keen D, Ullenhag A, Rosenbaum P, Granlund M. ‘Participation’: a systematic review of language, definitions, and constructs used in intervention research with children with disabilities. Developmental Medicine & Child Neurology [Internet]. 2015 Sep 28;58(1):29–38. Available from: https://doi.org/10.1111/dmcn.12932</ref>
* importance of understanding family participation within different context
* overview of components of the fPRC


== Components of the fPRC ==
== Components of the fPRC<ref name=":0" /> ==


=== Environment/ context ===
=== Environment/ context ===
* physical, social economical, cultural and institutioal context on  participation
* importance to understand following: preference, sense of self and activity competence within the family


==== Preferences ====
==== Preferences ====
* what is preference and how it impact participation
* individual factors
** interest, values?
** what is important for the family
* environmental factors
** cultural influences
** accessibility/ opportunities
* implication: identifying preference, accommodating


==== Sense of Self ====
==== Sense of Self ====
* what is sense of self and how it impact participation
* perception of themselves: identity, roles, values, beliefs
* self esteem/ confidence
* implication: promoting, validating,


==== Activity Competence ====
==== Activity Competence ====


* what is activity competence and how it impact participation
* same as ICF-CY<ref name=":0">Imms C, Granlund M, Wilson PH, Steenbergen B, Rosenbaum P, Gordon AM. Participation, both a means and an end: a conceptual analysis of processes and outcomes in childhood disability. Developmental Medicine & Child Neurology [Internet]. 2016 Sep 19;59(1):16–25. Available from: https://doi.org/10.1111/dmcn.13237</ref>
* same as ICF-CY<ref name=":0">Imms C, Granlund M, Wilson PH, Steenbergen B, Rosenbaum P, Gordon AM. Participation, both a means and an end: a conceptual analysis of processes and outcomes in childhood disability. Developmental Medicine & Child Neurology [Internet]. 2016 Sep 19;59(1):16–25. Available from: https://doi.org/10.1111/dmcn.13237</ref>
* capability and capacity<ref name=":0" />  
* capability and capacity<ref name=":0" />(physical and cognitive)
* perceived ability to participate/ perform
* skills, knoelwdge, confidence
* implication: self efficacy, skills development (physical and cognitive), recognise strength and limitations,


=== Participation ===
=== Participation ===
* what is participation? distinguish attendence, onvolvement and engagement
* What  is the significance within family dynamics?


==== Attendance ====
==== Attendance ====
* definition
* characteristics, example: physical presence, limited interaction/ contribution
* factors affecting: external factors, preference and motivation


==== Involvement ====
==== Involvement ====
* definition
* characteristics, example: active participation, contribution to activity completion or progress
* factors affecting: interest, imporatance of activity


==== Engagement ====
==== Engagement ====
* definition
* characteristics and example: level of active participation and interaction, emotional investment, commitment
* factors affecting: connection, belonging, alignment to indivisual beliefs


== Resources  ==
== Resources  ==
*ICF
*[[International Classification of Functioning, Disability and Health (ICF)|International Classification of Function (ICF)]]
*ICF-CY
*[[ICF-CY International Classification of Functioning, Disability and Health Children and Youth Version|International Classification of Function - Children and Youth (ICF-CY)]]
*fPRC  
*Family of Participation-related Construct (fPRC)
== References  ==
== References  ==


<references />
<references />

Revision as of 05:49, 3 March 2024

Original Editor - Trista Chan

Top Contributors - Trista Chan  

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Introduction[edit | edit source]

Family of Participation-related Construct (fPRC) is a framework proposed by researchers as an alternative to the ICF-CY framework. the fPRC acknowledges that participation is not solely based on an individual's ability, but is influenced by both intrinsic and extrinsic factors, and considers their individual, family and social context.

  • gap: participation construct unclear in intervention research[1]
  • importance of understanding family participation within different context
  • overview of components of the fPRC

Components of the fPRC[2][edit | edit source]

Environment/ context[edit | edit source]

  • physical, social economical, cultural and institutioal context on participation
  • importance to understand following: preference, sense of self and activity competence within the family

Preferences[edit | edit source]

  • what is preference and how it impact participation
  • individual factors
    • interest, values?
    • what is important for the family
  • environmental factors
    • cultural influences
    • accessibility/ opportunities
  • implication: identifying preference, accommodating

Sense of Self[edit | edit source]

  • what is sense of self and how it impact participation
  • perception of themselves: identity, roles, values, beliefs
  • self esteem/ confidence
  • implication: promoting, validating,

Activity Competence[edit | edit source]

  • what is activity competence and how it impact participation
  • same as ICF-CY[2]
  • capability and capacity[2](physical and cognitive)
  • perceived ability to participate/ perform
  • skills, knoelwdge, confidence
  • implication: self efficacy, skills development (physical and cognitive), recognise strength and limitations,

Participation[edit | edit source]

  • what is participation? distinguish attendence, onvolvement and engagement
  • What is the significance within family dynamics?

Attendance[edit | edit source]

  • definition
  • characteristics, example: physical presence, limited interaction/ contribution
  • factors affecting: external factors, preference and motivation

Involvement[edit | edit source]

  • definition
  • characteristics, example: active participation, contribution to activity completion or progress
  • factors affecting: interest, imporatance of activity

Engagement[edit | edit source]

  • definition
  • characteristics and example: level of active participation and interaction, emotional investment, commitment
  • factors affecting: connection, belonging, alignment to indivisual beliefs

Resources[edit | edit source]

References[edit | edit source]

  1. Imms C, Adair B, Keen D, Ullenhag A, Rosenbaum P, Granlund M. ‘Participation’: a systematic review of language, definitions, and constructs used in intervention research with children with disabilities. Developmental Medicine & Child Neurology [Internet]. 2015 Sep 28;58(1):29–38. Available from: https://doi.org/10.1111/dmcn.12932
  2. 2.0 2.1 2.2 Imms C, Granlund M, Wilson PH, Steenbergen B, Rosenbaum P, Gordon AM. Participation, both a means and an end: a conceptual analysis of processes and outcomes in childhood disability. Developmental Medicine & Child Neurology [Internet]. 2016 Sep 19;59(1):16–25. Available from: https://doi.org/10.1111/dmcn.13237