Patient Reported Outcome Measures for HIV

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Top Contributors - Melissa Coetsee, Carina Therese Magtibay and Kim Jackson  

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Introduction

Since the introduction of antiretroviral treatment (ART), HIV related mortality has reduced significantly, and more people are now living with this condition. Morbidity measures have therefore become more important in order to fully understand and measure the impact of HIV on the well-being of those affected by it.

Patient-reported outcomes measures (PROMs) are increasingly being used to measure and monitor quality of life and quality of care, with the aim of promoting patient-centred care . PROMs rely on patient reporting and has been shown to improve patient care by highlighting individual health priorities and by promoting patient engagement - this is of particular importance for patients living with chronic conditions like HIV.

PROMs can help facilitate the transition from disease-focused HIV care programmes, to programmes that look beyond disease parameters to focus on well-being and personalised care.

PROMs are very useful to assess the various interconnected dimensions that affect the well-being of people living with HIV (PLWH). These dimensions include:

• Physical factors - including frailty, loss of function and pain
• Psychological factors - including mental health concerns often associate with HIV (anxiety and depression)
• Social factors - including stigma and social support
• Spiritual factors
• Socio-economic factors - including access to care

In order to account for HIV-specific factors, such as stigma and ART related symptoms, HIV specific PROMs have been developed.

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