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Profile Of Function and Impairment Level Experience with Parkinson's Disease (PROFILE PD)

Original Editor - Arnold Fredrick D'Souza Top Contributors - Arnold Fredrick D'Souza

Introduction

The Profile Of Function and Impairment Level Experience with Parkinson's Disease (PROFILE PD) used today is based on the Duke University Parkinson's Disease Rating Scale.[1] PROFILE PD was developed as an alternative to the Unified Parkinson's Disease Rating Scale (UPDRS). The UPDRS is time-consuming and requires extensive training to administer proficiently, limiting its clinical utility for physiotherapists. PROFILE PD was developed with the goal to overcome these shortcomings.[2]

Intended Population

Unlike the UPDRS, which is more suited for later stages of PD, PROFILE PD can be used for all stages.[2]

Scoring and Interpretation

PROFILE PD is a 24-item scale, each item is scored between 0 (no problem) to 4 (severe or marked difficulty). This leads to a maximum score of 96 which suggests extreme dysfunction and a lowest score of 0 referring to no dysfunction.[2]

The 24 items are divided into three sections[2]:

A. Body systems

1. Tremor with activity

2. Resting tremor

3. Rigidity

4. Posture

5. Postural stability

6. Dyskinesia

7. Dystonia

8. Clinical fluctuations

9. Falling

10. Freezing with gait/ Start hesitation

11. Body bradykinesia

B. Activities

12. Speech

13. Dressing

14. Hygiene

15. Mealtime activities

16. Simple transfers

17. Bed mobility

18. Chair rise

19. Gait

20. Fine motor movement performance

21. Gross motor performance

C. Cognition/Affect

22. Depression

23. Memory

24. Involvement

Psychometric properties

Validity

Construct validity was established with UPDRS (r = 0.86), Schwab & England Activities of Daily Living Scale (r = -0.83), and Continuous Scale Physical Functional Performance test (r = -0.62).[2]

Reliability

Inter-rater reliability of PROFILE PD is high (ICC = 0.97).[2]

Translations

A Brazilian version of PROFILE PD has been developed.[3]

Resources

PROFILE PD is included in the Appendix of this paper.

References

  1. ↑ Cutson TM, Sloane R, Schenkman M. Development of a clinical rating scale for persons with Parkinson's disease. J Am Geriatric Soc 1999;47:763–64.
  2. ↑ 2.0 2.1 2.2 2.3 2.4 2.5 Schenkman M, McFann K, Barón AE. PROFILE PD: profile of function and impairment level experience with Parkinson disease--clinimetric properties of a rating scale for physical therapist practice. J Neurol Phys Ther. 2010 Dec;34(4):182-92.
  3. ↑ Swarowsky A, Fontana SR, Santos MP, Silva BA, Spagnuolo G, Ovando AC, et al. Cross cultural adaptations and psychometric domains of Brazilian version of PROFILE PD for Parkinson’s disease. Disability and rehabilitation. 2017 Aug 14;39(17):1759-70.
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